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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
1115 Waiver Amendments – July 2025 Update: Open Comment Periods
Learn more about proposed Medicaid 1115 Waiver amendments for Kentucky, South Carolina, Maine, and Illinois. For more information, reach out to Wesley at publicpolicy@familyvoices.org. Kentucky – Kentucky’s 1115 proposal would refer Medicaid expansion adults, aged...
The Big Beautiful Bill Act is Law. Now What?
On July 4, 2025, President Donald Trump signed the One Big Beautiful Bill Act (OBBA) into law. According to the Congressional Budget Office (CBO), the bill will reduce federal Medicaid spending by approximately $1 trillion over the next ten years, with the largest...
Department of Justice Issues Guidance on Language Access. What does it mean?
On Monday, July 14, the Department of Justice (DOJ) released formal guidance for federal agencies to comply with President Trump’s Executive Order No. 14,224, which declares English as the official language of the United States. The DOJ will oversee a government-wide...
CMS Announces Changes to 1115 Waiver Demonstrations
On July 17, the Centers for Medicare & Medicaid Services (CMS) announced a change to 1115 waivers that change how states can use Medicaid funds for enrollment of beneficiaries and for job training or employment activities. According to CMS, this change is “to...
New Resources – July 2025
Check out resources from Family Voices and our partners. Resources from Family Voices’ policy team are in both English and Spanish, with more languages in development. Partner resources are mainly in English. Resources on Authentically Engaging Youth in the Policy...
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